Here is a video by Brian and Laura Hadley of Oregon. Their children have been on Cyclodextrin Therapy for over a year. They presently recieve IV infusions and were able to begin Interthecal infusions in February 2012.
Watch this video to see the amazing lengths Chris and Hugh Hempel have gone to to save their girls and get a cure for NPC out of the lab.
Like any devastating illness the financial implications for families is almost as devastating, especially when insurance isn't available. This foundation was created to directly aid NPC families in dire need of financial support by Lisa and Jami Chavez to honor the memory of their beautiful daughter Breann.