Chase The Cure

The Reedy-DiGiovanni Family
Cumberland, RI 02864

shannon@chasethecure.net

  • HomeClick to open the Home menu
    • The Road Here
    • What Now
  • Chase on HPbCD
  • NPC Families & Fundraisers
  • Chase's Crusaders
  • Non Profit Public CharityClick to open the Non Profit Public Charity menu
    • Chase's Beneficiary Account
  • Adorable Kid PhotosClick to open the Adorable Kid Photos menu
    • Even More Photos
    • December 2011
    • January 2012
    • February 2012
    • March 2012
    • April 2012
    • May 2012
    • June 2012
    • July 2012
  • Vocabulary WordsClick to open the Vocabulary Words menu
    • Links
  • TreatmentsClick to open the Treatments menu
    • Cyclodextrin & The NIH
    • IV & IT Cylodextrin Infusions
    • Chase's Treatments & Therapies
  • About Us
  • Contact Us
  • PICK up on NPC InitiativeClick to open the PICK up on NPC Initiative menu
    • In Memory of...
    • Passing of a Princess
  • Past FundraisersClick to open the Past Fundraisers menu
    • 6.2.12 Fundraiser in RI
    • Limerock Baptist Breakfast
    • Uno July 2012
  • This is what NPC looks likeClick to open the This is what NPC looks like menu
    • Video of Chase

Chase the Cure, Inc Donations 

3/1/12

You've all been so generous in your donations we are holding off on the non profit donations temporarily before we hit the ceiling of collections under a public charity to make sure your donations are deductible. To make an immediate tax deductible donation to other non profits aligned with our vision please see the links to Hadley Hope and AddiandCassiFund on our cyclodextrin pages.  Our 501c status is pending! ...2/27/13...still pending....

 

 

Support directly to Chase is always welcome but not deductible. Recent donations have taken care of medical bills & nutritional supplements. Gifts can be made to his beneficiary account and are truly appreciated. They can be sent by clicking the paypal button below.

 

We thank you for supporting our cause and are forever touched by your prayers. 

- The Reedy-DiGiovanni Family

  • Chase the Cure Inc

    Our Group

    Our small group is part of a larger community of Niemann Pick Disease sufferers.  We are focusing specifically on research and treatment options for Niemann Pick C.  Our Chase has the NPC1 mutation, the type shared by the majority of children and young adults with NPC.  Funds raised by Chase the Cure in honor of Chase DiGiovanni will be distributed to the NNPDF and other foundations that are presenly working on INDs and organizing to bring treatments out of the labs and into the children who need them. 

    We are a public charity operating under an organizing document as a Non Profit Corporation in the State of Vermont, as a pending 501c (3). Deductions you make to Chase the Cure Inc via our site are tax deductible using our EIN and receipt provided at the time of your donation.  We are delighted to process funds by mail too and provide you with your tax deduction letter! Please contact us at shannon@chasethecure.net for further information or to simply say hello, we enjoy hearing from everyone.

     

     2/27/13  PLEASE NOTE WE ARE MOVING HIS CORP. FROM VERMONT TO RHODE ISLAND AND WILL UPDATE THIS SOON!

    OUR PROMISE

    CTC Pledges to devote every possible resource to research and treatment of Niemann-Pick C Disease.

    CTC and Chase's Family Pledge to honor the suggestions and lessons of those who have come before us and struggle with us now for the collective good.

     

    Our family pledges to party like rock stars (with plenty of naps) each and every day with Chase. 

     

     

     Thanks for your interest in donating to support Niemann Pick C Research!     NPC is a heartbreaking disease, the amount of time taken to currently diagnos it  is staggering.   The symptoms are clear, the blood test available and the treatment options underway.   

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    Some people have asked how to donate just to help our family, we are very appreciative.  Any family dealing with a chronic illness is plagued by time out of work and very strained resources.   Gifts to our family are greatly appreciated, but they aren't tax deductible, please remember that.  If you are still interested in helping with the day to day and some of Chase's care needs that aren't covered by health care there is an account at Coastway Credit Union under Ray DiGiovanni & Shannon Reedy (Dad and Mom.)  Coastway Credit Union 210 Front Street Lincoln RI 02865

PICK UP ON N.P.C

 

  

Copyright 2013 Chase The Cure, Inc. All rights reserved.  Our Foundation is a Non Profit Organization operating under an organizing document in the State of Vermont, USA

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The Reedy-DiGiovanni Family
Cumberland, RI 02864

shannon@chasethecure.net